LIVING WITH CRPS IS THE PITS

I  cant  beleive i have this for so long. 2 years! I can't  do anything am not able to do a lot of things now without pain, if it doesn't come straight away, it comes  after i have done something. Like washing up, or folding, All of the things i had taken for granted, i now wish i could do, without pain.I used to love mowing the lawn, and gardening, now sometimes i can't even go outside,because my skin feels like it's on fire even more. When i get the freezing cold pain with the burn behind it, it sort of reminds me of frost bite. It made me feel like i was really losing my mind! Because when my skin touched was even colder. How could you tell a Dr this without him thinking you are totally mad. My whole arm swells, sometimes it feels like the circulation gets cut off. My skin actually looks older on that arm, like there is no elastisity in it. My nails grow very slow. I have to take a jumper with me wherever i go, just in case of a breeze or ,  airconditioning.Now that its in my shoulders , it hurts to lay down , most times, it was badenough in my arm. Now it's in my head , and mouth! Ifeel like i have eaten a hand full of chillies, and i have to be careful when brushing my hair. Wearing a bra, or a seat belt is murder!I'm just hoping my story helps someone else. I could have done with some validation, that's for sure.I will try and write as often as i can, but i never know what i'm going to experience from one day to the next. Stay safe, and sane people, and i wish you low pain days. xxx

BACK AGAIN

Well here i am again,i hope you all have been keeping well. I have been in a lot of pain for past couple of weeks. My condition  has travelled into my face neck, and mouth, so most of my upper body has been inflicted now. My eyesight has deteriated, my balance isn't good, neither is short term memory,my left ear has been  having the feeling of being blocked. Another Dr beleives i have the syndrome, so now i have three of them on my side.Life has  been very hard, and depressing. Not only do we have to deal with this, but our neighbours have been nothing butassholes. We were treated with respect when we both had employment, but since i can't work, and hubby looks after me, we are treated like something they have stood in. So much for country hospitality!This would have to be the worse country town i have had the misfortune to live in, and can't wait to move.I will keep you posted. Love M