I cant beleive i have this for so long. 2 years! I can't do anything am not able to do a lot of things now without pain, if it doesn't come straight away, it comes after i have done something. Like washing up, or folding, All of the things i had taken for granted, i now wish i could do, without pain.I used to love mowing the lawn, and gardening, now sometimes i can't even go outside,because my skin feels like it's on fire even more. When i get the freezing cold pain with the burn behind it, it sort of reminds me of frost bite. It made me feel like i was really losing my mind! Because when my skin touched was even colder. How could you tell a Dr this without him thinking you are totally mad. My whole arm swells, sometimes it feels like the circulation gets cut off. My skin actually looks older on that arm, like there is no elastisity in it. My nails grow very slow. I have to take a jumper with me wherever i go, just in case of a breeze or , airconditioning.Now that its in my shoulders , it hurts to lay down , most times, it was badenough in my arm. Now it's in my head , and mouth! Ifeel like i have eaten a hand full of chillies, and i have to be careful when brushing my hair. Wearing a bra, or a seat belt is murder!I'm just hoping my story helps someone else. I could have done with some validation, that's for sure.I will try and write as often as i can, but i never know what i'm going to experience from one day to the next. Stay safe, and sane people, and i wish you low pain days. xxx
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